PATIENTS AND FAMILIES Patient Advocacy and Engagement

Our commitment to individuals and families impacted by genetic disease

At AVROBIO, we are committed to helping individuals and families impacted by rare genetic conditions by striving to develop gene therapies designed to halt or reverse disease and eliminate the need for chronic treatment. We seek to understand the unique experiences and complex needs of individuals and families so that we can support them throughout their journeys.

Our guiding principles

The AVROBIO Patient Advocacy and Engagement Team is the point of contact between the company and the patient communities we serve. As we work to build meaningful and valuable relationships with patient communities, our team follows these guiding principles:

  • We aim to understand and support the journeys and unique needs of individuals and families affected by genetic disorders.
  • Community support initiatives are based on achieving shared goals, such as increasing disease awareness, educating and empowering people living with genetic disorders, developing advanced therapies and enabling access to those therapies.
  • Relationships and collaborations will be transparent, ethical and comply with all laws, regulations and codes in the country in which the organization operates.
  • We will respect patient organizations as independent, trusted advocates for their respective communities.
  • We will not promote any AVROBIO investigational therapies as safe and effective.
  • We will not condition our provision of financial or other support on any endorsement or recommendation of any AVROBIO therapy or initiatives, nor will we expect any such endorsement or recommendation in return for providing support.
  • We will respect the privacy of all personal information and data we may receive.
  • We encourage organizations to pursue and establish multiple funding sources.
  • We will conduct ourselves at all times in accordance with our mission and principles and hold ourselves accountable to the highest ethical standards.

Please reach out to us with any questions at patients@AVROBIO.com.

Meet the patient engagement team

Fernanda Copeland, MS, RD
Fernanda Copeland, MS, RD
Head, Global Patient Advocacy & Engagement
Lori Ann Correia, MS, CGC
Lori Ann Correia, MS, CGC
Associate Director, Global Patient Advocacy & Engagement

AVROBIO

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